Sunday, September 13, 2009

Have I got a story to tell you!

Hi there. My name is Ella Katherine. I was born on April 26, 2009, coming 6 weeks early after deciding I was done staying in Mommy's tummy. When I was 3 days old, Mommy and I were getting ready to go home when a Doctor noticed I had really weak femoral pulses, so decided to be safe and got a scan. It turned out that I had a problem with my heart, called Coarctation of the Aorta. That same day Mommy and I got to ride in a cool ambulance across town to Children's Hospital. When we got there, we talked to a lot of Doctors, who told Mommy and Daddy I needed surgery really fast to fix my heart. The next day I went to sleep and the doctors made my heart work better.

I got to stay in a really cool room in the NICU for almost a whole month. Before the doctors fixed my heart, bloodflow to my lower body was slow, so I got what is called necrosis in my bowels, so I didn't get to eat for two whole weeks! Finally, I got to go home for the first time. I loved being with my 2 brothers, Jack and Josh. Then a couple of weeks later, Mommy and my Aunt Beth noticed my heart scar looked red. I went to the Doctor and I had stitches that were supposed to dissolve but didn't. So the doctor pulled one out. I went home, but still didn't feel good. Mommy took me back to the hospital the next day. Turns out I had developed a pretty bad staph infection in my wound. They had to put me to sleep again and get the rest of the stitches out and redo my scar. I stayed in the hospital again for another week. I missed my bed and my brothers. We finally got to go home!

Just last week I started feeling bad and running a high fever. Mommy took me to the Doctor and he couldn't figure out what was wrong with me. We went back to the hospital and they did a bunch of tests on me. I had a urinary tract infection, but the doctors thought something else was wrong. They did more tests and found out my bladder wasn't working right. I have what is called VUR. It is a reflux disease where my bladder pushes my peepee back into my kidneys. I have level 4 to 5, which is the worst kind to have. My kidneys can get really sick if I don't get my bladder fixed. The doctors wanted to wait a little while before doing my surgery so I can get bigger and hopefully a lot healthier. Sometime next year I will probably have my surgery to repair my bladder and kidneys. I know the doctors will take good care of me. Please ask God to keep me safe and let me grow big and strong so I can play with my brothers...
they are so much fun!


  1. Get Well Soon Baby Ella!! In our thoughts and prayers!!

  2. You are truly an angel--a gift from God. Will be praying for you and your family for strength and comfort.

  3. Hi little Ella!!! You are such a beautiful girl and GOD is going to take care of you. You keep getting better!!! You are in our thoughts and prayers.

  4. Oh my goodness, that last picture is precious!

    Keep getting stronger, Ella. We're all here behind you!